HERON Introduction

1. Access HERON: https://heron.kumc.edu

Requirements for access

  • Secure KUMC network (either on campus or via VPN)
  • KUMC Faculty member status or sponsored by a faculty member
  • Up-to-date Human Subjects Training
  • Signed system access agreement

2. Create a search

  • Search by dragging and dropping concepts (e.g., search terms) into groups.
  • Search options include: limit by dates, searching within the same financial encounter, defining multiple occurrences, excluding items and more.
  • Watch a video demonstrating a simple search.
  • See the HERON Blog for a list of data types found in HERON, including date ranges and sources
  • Watch a video discussing the search options within the tool.

3. Analysis Tools

Each tool requires a patient set, also called patient list.  To create a patient set, click the Patient List checkbox on the search pop-up that appears after you click Run Query.  Once the search is complete, you can access the patient set in the previous query box (lower left section of the screen) by clicking on the search title and opening the results folder.

  • Demographics - quickly creates a bar graph for demographic information (e.g., gender, race, etc.) for one or two patient sets.
  • Timeline - create a visual representation for patient observation occurrence.  Observations are marked with a tic on a timeline.  Hover over the observation tic for additional information, such as time or value when available.
  • Cancer Survival Analysis (Kaplin Meier) - Analysis tool for Kansas University Hospital Tumor Registry data.  This tool allows you to select a cancer site, an outcome, a timeframe and a stratification to plot the survival rate.  Note: it only works for Tumor Registry data (within the Cancer Cases folder).
  • Multi-Cohort Survival Analysis - Like the Cancer Survival Analysis tool, histograms are created representing survival rates.  Unlike the Cancer Survival Analysis tool, the Multi-Cohort Survival Analysis tool is not limited to tumor registry data or just one patient set.  Compare two patient sets on any criteria.

4. Request Data

Faculty members can request identified or de-identified data.  See instructions for requesting a data set or watch the training video.  Data is provided in a CSV file.

Learn more about the Frontiers Research Participant Registry and searching HERON to find consenting patients for research trials.


Need more help?

  • View more training videos
  • Read the FAQs page
  • Attend the Lunch and Learn training clinic in 3001D Student Center (12-1:30pm) on the first and third Tue of each month.  Register in advance if possible but drop-ins are welcome.
  • Ask the Clinical Informatics Coordinator for help via the feedback form or at 5-7470.
  • Do you have an involved project or want us to do the searching for you?  Consider adding Informatics as a component on your grant.  Request an initial consultation.  We can discuss the scope and needs of your project.